On the outside I look like any other healthy child but on the
inside it’s a different story
Cystic Fibrosis (CF) is the UK’s most common life-threatening
inherited disease and 1 in 25 of us carries the gene. My Mum and Dad
found out they both had the gene when I was poorly as a baby. I didn’t
gain weight, kept getting chest infections and was repeatedly sick.
Eventually the doctors worked out I had CF.
The disease attacks the body’s vital organs, especially the lungs
and digestive system, by literally clogging them with thick sticky mucus
that makes it difficult to breathe and digest food. Average life expectancy
is 31. At present there is no cure and 3 young lives are lost each week
in the UK to the effects of CF.
My day starts with 6 teaspoons of the dreaded foul tasting antibiotics,
followed by physiotherapy, then more medicine and then I can have breakfast.
This happens again in the evening and I have medicine throughout the
day whenever I eat or drink. I often get coughs and colds and then I
need more medicine, injections and physio and have to stay in hospital.
I am really well at the moment and I love swimming, running, jumping
and bouncing which I do all the time to keep my lungs healthy. I am
very lucky as most people with CF are not so well. I am the healthiest
I can ever be today and over time my health will start to deteriorate
but you could help change that!
On the 13th April 2008 my Mum (Wendy) and her friends Jane Fewkes and
Phil James will be running the Flora London Marathon to raise £15,000
for the CF trust. This money will help fund the gene therapy research
that is so vital for CF sufferes. Scientists are close to finding an
effective gene therapy which will halt the lung damage that kills so
many young people in this country. For me and all those who have CF
it will be the gift of life and can’t come soon enough. Please
support my Mum, Jane and Phil running for those who can’t and
be part of history in finding a cure for CF. Please dig deep and sponsor
me online at www.justgiving.com/benjof
Donating through this site is simple, fast and totally secure. It is
also the most efficient way to sponsor me: Cystic Fibrosis Trust will
receive your money faster and, if you are a UK taxpayer, an extra 28%
in tax will be added to your gift at no cost to you.
You can also send an email pledge to firstname.lastname@example.org
Thank you for visiting my fundraising page
Charity Registration No 1079049